At Paul`s school this week they are presenting their winter music program, you know those little darlings are sssoooooooo cute up their singing. I will attend the program this afternoon, the last show because well, you will figure it out very soon.
The door opened and four kids came in and started taking off the boots, mittens, etc, leaving the door open of course. Then Paul started jumping up and down screaming IT`S GONE, IT`S REALLY GONE FOREVER!!! He is throwing boots, coat, mittens, backpack, lunch box, and glasses at the wall, bam, bam, bam. so I pick him up still in his snow pants and take him to the rocking chair to calm him down.
He is flapping his arms, kicking, screaming, and crying all the while telling me that the gym is gone because there are lots and lots of chairs in there, and peoples, and kids everywhere, it is noisy, the piano is there, and Mrs. Music Teacher, and he is sad because he wants the gym back, and he is very, very sad.
Oh my goodness this kid thinks that because the music program is in the gym it is actually gone forever. I do my best to explain that everything will be back to normal after the program is over, but he does not understand time, he does not transfer information from one setting to another and this music program itself is very hard work for hm.
While I am calming Paul down Allen decides that throwing shoes, boots, coats, etc is the thing to do so our wall now has a few more holes in it and a little less paint on it.
Hanna ate three bags of fruit snacks (the orthodontist is going to cringe when she hears this). The dollar bill Paul had gotten from the tooth fairy was on the corner of the counter because I was going to take it down to the safe when I went down to get milk from the locked refrigerator and I did not have a pocket in my sweat pants. Well at any rate it disappeared and Hanna I know you took it and if you did not give it away I will find it because it has glitter on it, so you have been caught AGAIN!
Lauren was being a very smart young lady, she went downstairs and stayed away until all was calm.
This afternoon I am going to the music program and then I am going to find Paul and take him to the gym. We will sit there and watch them stack the chairs, take down the bleachers, and sweep the floor so that Mrs. Gym Teacher will be in the gym next week and Mrs. Music Teacher will be back in the music room where she belongs.
Friday, January 14, 2011
Wednesday, January 12, 2011
One Down Nineteen To Go
Paul lost his first tooth today while at school. He must have swallowed it or something because he did not bring it home with him. This tooth has been loose since early December. He was not going to let anyone take it out of his mouth. The new tooth is already coming up. It looks really crooked, sigh, really big sigh, do we have another kid needing the orthodontist? He only has nineteen more to lose. Our little boy is growing up fast,very fast.
Tuesday, January 11, 2011
Just A Flower
We had a meeting yesterday afternoon with twelve people in attendance and three more that should have been there. ( I did excuse them knowing there was plenty of information already and they will get there chance later). We began going over the evaluation that I had requested last spring which is finally done. In this testing Paul was the sweet little guy I know. All of there formal testing told them EVERYTHING I have been telling them for a long time now.
Paul was having trouble with one part of the testing so he told them that he was not going to do it, "lets just pretend". I thought that was pretty creative coming from him. On another part he was asked to identify pictures and when he came to the picture of the flower he said that it was a flower and then he was asked what kind of flower it was he said "just a flower".
Paul is not able to pay attention to details at this point unless he is obsessing with something (usually cars). He does not care if it is a red rose, a yellow tulip, or blue daisy, a flower is a flower and that`s that. That is okay for him right now, we can worry about the details later if and when he ever gets to that point.
Now comes the tricky part of this I as his mom know all of the details and want them documented to represent the complete picture of who he is, how he functions, and how to best provide a learning environment that will meet as many of his needs as possible. He is a complex child who has numerous diagnosis so there needs to be a fair amount of detail here. I have a team of fourteen other people who are not seeing all of the details that I am so we have to come to some sort of agreement as to how to best do this. I am willing to make some concessions, but I do not want to make the picture so simple as to leave out important information that could really help them to work with him effectively and make his school experience the best that it can be.
Until next week when we meet again to try to finish this laborious task I have some details to think about. If only it were "just a flower" life would be so much easier wouldn`t it,
Paul was having trouble with one part of the testing so he told them that he was not going to do it, "lets just pretend". I thought that was pretty creative coming from him. On another part he was asked to identify pictures and when he came to the picture of the flower he said that it was a flower and then he was asked what kind of flower it was he said "just a flower".
Paul is not able to pay attention to details at this point unless he is obsessing with something (usually cars). He does not care if it is a red rose, a yellow tulip, or blue daisy, a flower is a flower and that`s that. That is okay for him right now, we can worry about the details later if and when he ever gets to that point.
Now comes the tricky part of this I as his mom know all of the details and want them documented to represent the complete picture of who he is, how he functions, and how to best provide a learning environment that will meet as many of his needs as possible. He is a complex child who has numerous diagnosis so there needs to be a fair amount of detail here. I have a team of fourteen other people who are not seeing all of the details that I am so we have to come to some sort of agreement as to how to best do this. I am willing to make some concessions, but I do not want to make the picture so simple as to leave out important information that could really help them to work with him effectively and make his school experience the best that it can be.
Until next week when we meet again to try to finish this laborious task I have some details to think about. If only it were "just a flower" life would be so much easier wouldn`t it,
Friday, January 7, 2011
Aurgh!! Anyway
We have been back from vacation for less then two weeks and every single day I have had to go some place or do something. Today is the first day everyone else has been out of the house doing their own thing and then when I turn on the news at lunch time I see schools are closing early due to the weather as close as twenty- five miles away. They better stay put here!
We are still working on getting Lauren`s seizure issues under control. This involves a lot of medical appointments, phone calls, and documenting. It is going to take some time to get this right, but we will figure it out. We have an excellent team working on it.
Hanna has been bonkers lately. She is scheduled to have surgery in less then two weeks and she knows something is up. We will be going over the particulars many, many times with her. Finding ways to deal with her when she does not understand takes some creativity. In the mean time she is really trying the patience of all of us.
We have finally completed a full evaluation for Paul so I am preparing for a meeting to get things moving forward for him. I know everyone is not going to be on the same page here so I am getting prepared to be the crazy mom if I have to.
Someone (thanks Trevor) who was trying to be helpful, left the freezer door open so we had to have a cleaning party late the other night. We had lots of things that were usable but could not go back in the freezer so I have been cooking it all up.
My van was is an accident while we were gone (one PCA backed into the other on the ice) and the re-set switch for the wheelchair ramp was damaged so we have been putting it up and down by hand until we can get the part to fix it. This is a dirty, heavy, job to do by hand. The insurance paperwork is finally all done so now all I have to do is get an authorized person to repair the thing. I hope we do not have to take it to the cities to get it done. That would be just one more trip I do not need.
We have nothing on the schedule except to get grocries (we always need those) this weekend so I hope that I can get caught up on a few things here, even with the kids at home. It is going to be cold and windy so there is not going to be any chance that I can send them outside for very long.
We are still working on getting Lauren`s seizure issues under control. This involves a lot of medical appointments, phone calls, and documenting. It is going to take some time to get this right, but we will figure it out. We have an excellent team working on it.
Hanna has been bonkers lately. She is scheduled to have surgery in less then two weeks and she knows something is up. We will be going over the particulars many, many times with her. Finding ways to deal with her when she does not understand takes some creativity. In the mean time she is really trying the patience of all of us.
We have finally completed a full evaluation for Paul so I am preparing for a meeting to get things moving forward for him. I know everyone is not going to be on the same page here so I am getting prepared to be the crazy mom if I have to.
Someone (thanks Trevor) who was trying to be helpful, left the freezer door open so we had to have a cleaning party late the other night. We had lots of things that were usable but could not go back in the freezer so I have been cooking it all up.
My van was is an accident while we were gone (one PCA backed into the other on the ice) and the re-set switch for the wheelchair ramp was damaged so we have been putting it up and down by hand until we can get the part to fix it. This is a dirty, heavy, job to do by hand. The insurance paperwork is finally all done so now all I have to do is get an authorized person to repair the thing. I hope we do not have to take it to the cities to get it done. That would be just one more trip I do not need.
We have nothing on the schedule except to get grocries (we always need those) this weekend so I hope that I can get caught up on a few things here, even with the kids at home. It is going to be cold and windy so there is not going to be any chance that I can send them outside for very long.
Monday, January 3, 2011
Hanna Is Up To No Good
We had a really great vacation!!! I will be sure to put some photos up when I get around to it, but for now we are back to normal routine.
Yesterday Rene` had the kids get their backpacks out so that we could make sure they had everything ready to go back to school. They all got the job done except Hanna. She could not find her backpack anywhere so we told her that she was going to have to give up some of her allowance to put up as a reward for the finder. Everyone searched this house, van, truck, and garage for it. Lauren and Rene` emptied out the closet completely looking for it. We could not find it so I had Rene` call Christine (one of the PCAs who watched her while we were gone and she told her that the backpack had been on the stool in the dining room. That is where four us of remembered seeing it. She also said that there had been candy in it from school. Knowing that there was candy in the backpack we gave up the search. I told Hanna that if it did not turn up she was going to be buying a new one and replacing the contents as well.
This morning two minutes after it was time to be heading out the door to catch the bus that hot green backpack appeared in the closet where it is supposed to be, the one the girls had emptied just yesterday afternoon. Just for the record the candy was ALL gone, but there were plenty of empty wrappers in there.
We are back to our reality that's for sure.
Yesterday Rene` had the kids get their backpacks out so that we could make sure they had everything ready to go back to school. They all got the job done except Hanna. She could not find her backpack anywhere so we told her that she was going to have to give up some of her allowance to put up as a reward for the finder. Everyone searched this house, van, truck, and garage for it. Lauren and Rene` emptied out the closet completely looking for it. We could not find it so I had Rene` call Christine (one of the PCAs who watched her while we were gone and she told her that the backpack had been on the stool in the dining room. That is where four us of remembered seeing it. She also said that there had been candy in it from school. Knowing that there was candy in the backpack we gave up the search. I told Hanna that if it did not turn up she was going to be buying a new one and replacing the contents as well.
This morning two minutes after it was time to be heading out the door to catch the bus that hot green backpack appeared in the closet where it is supposed to be, the one the girls had emptied just yesterday afternoon. Just for the record the candy was ALL gone, but there were plenty of empty wrappers in there.
We are back to our reality that's for sure.
Friday, December 17, 2010
Outta Here
We are outta here in about an hour, oh my goodness do we need a break!! Hanna has just been nuts lately. Every single day we here I hate you, this is the dumbest bleep family in earth, I don`t want to live here, I don`t have to listen to anyone, I can do what I want to, and on and on and on. This is exactly why she is NOT going on vacation with us.
We have nine other members of this family who really do enjoy spending time together, we play and work without issues. We can relax and have fun and guess what everyone appreciates the time we do have together. Of course we have three other kids who require a lot of care, but they will say thank you, please, I love you, and they like to have fun.
when you live with the chaos of attachment issues all the time you do need a break every now and again. For all of those people who have been telling us that we are not treating Hanna fairly just come live here for a month or two and just maybe you will change your minds. We give way more of our time and energy to her just because it is needed. She has been given numerous opportunities to get with the program and just can not do so, at least not at this point. We have taken her with us as we have traveled Virginia, Maryland, Florida, North Dakota, and Missouri. She used to do pretty well on trips, but now days that isn`t the situation so to bad for her.
We will have lots of fun, relax, get a tan, and come back ready to take one Hanna for another year.
We have nine other members of this family who really do enjoy spending time together, we play and work without issues. We can relax and have fun and guess what everyone appreciates the time we do have together. Of course we have three other kids who require a lot of care, but they will say thank you, please, I love you, and they like to have fun.
when you live with the chaos of attachment issues all the time you do need a break every now and again. For all of those people who have been telling us that we are not treating Hanna fairly just come live here for a month or two and just maybe you will change your minds. We give way more of our time and energy to her just because it is needed. She has been given numerous opportunities to get with the program and just can not do so, at least not at this point. We have taken her with us as we have traveled Virginia, Maryland, Florida, North Dakota, and Missouri. She used to do pretty well on trips, but now days that isn`t the situation so to bad for her.
We will have lots of fun, relax, get a tan, and come back ready to take one Hanna for another year.
Tuesday, December 14, 2010
Crazy Continues
Things here have been just a bit crazy lately.
Last weekend we had planned to have lunch with Allen`s other mom, and get together with grandma, aunts, uncles, and cousins to celebrate the holidays. Non of that happened due to a bit of a snow storm, well okay a pretty big one at that. I have no idea when we will reschedule all of that.
Lauren is now on medication trials for her seizure issue and so far all is going okay, except that we are still seeing seizure behavior. the dose of medication will be increased and then we will see what happens next.
Both Hanna and Lauren are wearing bands on their braces and suddenly they have all disappeared. I know we had lots of them and my guess is that Hanna is up to no good and did something with them. At any rate I have to figure out how to get more of them soon since they do not have an appointment until January.
Karre and Lauren participated in the choir concert for school last night. They did not have the ramp to the building shoveled out so we had to go around to the side entrance to get Lauren`s wheelchair in the building. It was very icy and there were several elderly people who were also having trouble with the situation.
I am trying to get everything organized and packed up because we are going on vacation, at least most of us are. Rene` and Trevor will be on break from college so they will join us. Jared can not get the time off from his job so he is staying here and we are leaving Hanna home, too. I will write more about that later in the week, hopefully.
I did get the refrigerator, which was really a mess,cleaned out last weekend since we could not go anywhere anyway.
Tomorrow I am going to get something done with my hair. It really needs some work.
That is pretty much how things have been going around here lately, just one thing after another with no end in sight. At least I have some warm weather and a beach to look forward to.
Last weekend we had planned to have lunch with Allen`s other mom, and get together with grandma, aunts, uncles, and cousins to celebrate the holidays. Non of that happened due to a bit of a snow storm, well okay a pretty big one at that. I have no idea when we will reschedule all of that.
Lauren is now on medication trials for her seizure issue and so far all is going okay, except that we are still seeing seizure behavior. the dose of medication will be increased and then we will see what happens next.
Both Hanna and Lauren are wearing bands on their braces and suddenly they have all disappeared. I know we had lots of them and my guess is that Hanna is up to no good and did something with them. At any rate I have to figure out how to get more of them soon since they do not have an appointment until January.
Karre and Lauren participated in the choir concert for school last night. They did not have the ramp to the building shoveled out so we had to go around to the side entrance to get Lauren`s wheelchair in the building. It was very icy and there were several elderly people who were also having trouble with the situation.
I am trying to get everything organized and packed up because we are going on vacation, at least most of us are. Rene` and Trevor will be on break from college so they will join us. Jared can not get the time off from his job so he is staying here and we are leaving Hanna home, too. I will write more about that later in the week, hopefully.
I did get the refrigerator, which was really a mess,cleaned out last weekend since we could not go anywhere anyway.
Tomorrow I am going to get something done with my hair. It really needs some work.
That is pretty much how things have been going around here lately, just one thing after another with no end in sight. At least I have some warm weather and a beach to look forward to.
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