I am trying to figure out why there has to be a crisis and complete chaos before you can actually get the services a kid needs to function? I do not do well operating in crisis mode at all times. I would rather prevent any crisis from happening in the first place. Now I know there are time of crisis because that is part of life, but not everything has to reach that state of breakdown does it?
We as a family had talked over a couple of months about what it is that we need in order for our family to function in a healthy manner. We then put this information in writing and presented to Hanna`s worker. Guess what she FINALLY got the idea that we were serious about changes needing to be made and we were very clear in the fact that we can not continue to live in crisis mode any longer. This meant that changes needed to be made NOW or there was going to be a need for plan B which as a family we had decided was not good at all, but it would allow the nine of us who are attached to one another to live without the constant chaos that we endure on a daily basis now.
The plan is not perfect, but it is very doable. I am pretty sure that there will be a need for drawing the line in the sand many more times in the coming years. Now we know what we are doing and will be able to go into it with a bit less stress. Raising kids with disabilities is no picnic at the beach.