I took Paul to the neurologist today, yeah I know another appointment. There are lots and lots of them with these kids.
Paul`s EEG showed very normal activity, he has been controlled on medication for four years and has shown no signs of seizures. That all indicates that he has grown enough and his brain has healed enough for us to begin a long process of slowly taking him off his seizure medications. The whole thing will take six weeks but if he goes without a seizure during that time chances are very good that he will be seizure free for life. There is a small chance that he will have seizures again but we will just say lots of prayers, watch him closely, and see what happens.
Once we get him off this medication we will need to reevaluate his behavior, mostly due to FAS and see if we need to do something else with medications. As it is the seizure medications are supposedly calming him down, but he is far from calm, quiet, on task, or any where near age appropriate.
Well here we go on another adventure.