Today Hanna turns 13 so now she is a real teenager, look out world here she comes! Twelve was no picnic, for that matter the past three years have been a rather scary roller coaster ride with this kid. We have had a bit of a lull in the action this summer and goodness knows I hope it lasts forever, but being realistic I am pretty sure that she will provide plenty of adventure ahead.
We will celebrate very little today just because that is all she can handle, especially since we are going camping for the weekend. The gifts are pajamas and coloring and puzzle books from Mom, Dad, and the kids. Jared got her a Guess Who game, mainly because he wants to play it and it gives them something to do when he watches her. We will have tater-tot hot dish (her favorite) and ice cream with Reece's Pieces ( I will pass on those) for dinner tonight.
My birthday wish for Hanna today is for her to find happiness being the adorable bubbly, brown eyed, wonder we broght into our family five years ago. That is all I want for her just to be happy.
Thursday, July 29, 2010
Wednesday, July 28, 2010
The Baker
Well we may be down to one PCA, (Karre) along with Mom and Dad for the camping trip this weekend. Jared just got hired as a pastry chef at some fairly fancy restaurant/bake shop in a beautiful city on the banks of the St. Croix River. This is what he has been waiting for since last fall when he graduated from school. He called and told us that they want him there at 2:30 tomorrow afternoon, but he does not know how long he needs to be there so we will be waiting for him to call us when he has a better idea what is going on. We can handle the little, not so litte ones on our own if need be. Jared wants to bake so we will not get in his way.
Good luck Mr. Baker!!
Good luck Mr. Baker!!
Another Headache
I just found out that I have another headache to deal with here. Lauren has impacted wisdom teeth, the dentist wants them out and so do I, but the new policy for MA is that they will not pay for removing them until there is a crisis. Like how crazy is this.
They are paying to have her teeth straightened out, yet they are willing to leave the mess in her mouth to wreck all of the work that is being done so they will have a huge bill to deal with.
Lauren is not going to be able to tell when she is in pain until it is far to late to deal with.
The only way they are going to fix the problem is if she needs to be admitted through the emergency room with a life threatening infection. This means that she would not get treatment at the specialized hospital that knows what they are doing when it comes to working with persons who have special needs.
Really does this kid need any more medical issues to deal with here? This mom will have to add an appeal to the list of things to get done this week, oh and by the way they have no time table for a response.
This is the kind of stuff that I deal with ALL THE TIME! This is why I have a hard time convincing myself that I should advocate for other families to adopt these very difficult kids. Let me say here it is not the kids who cause me to shudder when the subject of adoption comes up it is trying to get them what they need to function to the best of their ability, to live safely in their homes with their families, and give support to those families.
They are paying to have her teeth straightened out, yet they are willing to leave the mess in her mouth to wreck all of the work that is being done so they will have a huge bill to deal with.
Lauren is not going to be able to tell when she is in pain until it is far to late to deal with.
The only way they are going to fix the problem is if she needs to be admitted through the emergency room with a life threatening infection. This means that she would not get treatment at the specialized hospital that knows what they are doing when it comes to working with persons who have special needs.
Really does this kid need any more medical issues to deal with here? This mom will have to add an appeal to the list of things to get done this week, oh and by the way they have no time table for a response.
This is the kind of stuff that I deal with ALL THE TIME! This is why I have a hard time convincing myself that I should advocate for other families to adopt these very difficult kids. Let me say here it is not the kids who cause me to shudder when the subject of adoption comes up it is trying to get them what they need to function to the best of their ability, to live safely in their homes with their families, and give support to those families.
Tuesday, July 27, 2010
On The Go
This is one of those weeks where I spend the days running from one thing to another. Yesterday I took Paul to the U of M for his ophthalmology appointment. He is doing great, his surgeon is very pleased with the results, and best of all he does not need to be seen for six months.
Today Lauren had to get to braces on her bottom teeth. Hanna had to have her mouth rearranged as usual. We are six weeks away from the first surgery scheduled on her mouth. I am both looking forward to getting this process started and dreading having to deal with the kid who is not going to handle this well at all. We also had some work done on Lauren`s AFO`s so that maybe they will quit causing skin breakdown on her foot.
Tomorrow I have haircuts scheduled for three kids and I am going to take them out for pizza.
Thursday I have to get everything packed for our camping adventure this weekend, yes,
we are going camping with some other families who also have adopted kids with special needs. These are amazing people who we have the privilege to hang out with. They totally understand when we have to keep to the routine, tone things down, when kids go bonkers, and that we always have to be flexible and ready to change course in an instant. It will be a blast.
It is one of those weeks where I have so much to do and so little time to do it in, but I have to weekend to look forward to at the end.
Today Lauren had to get to braces on her bottom teeth. Hanna had to have her mouth rearranged as usual. We are six weeks away from the first surgery scheduled on her mouth. I am both looking forward to getting this process started and dreading having to deal with the kid who is not going to handle this well at all. We also had some work done on Lauren`s AFO`s so that maybe they will quit causing skin breakdown on her foot.
Tomorrow I have haircuts scheduled for three kids and I am going to take them out for pizza.
Thursday I have to get everything packed for our camping adventure this weekend, yes,
we are going camping with some other families who also have adopted kids with special needs. These are amazing people who we have the privilege to hang out with. They totally understand when we have to keep to the routine, tone things down, when kids go bonkers, and that we always have to be flexible and ready to change course in an instant. It will be a blast.
It is one of those weeks where I have so much to do and so little time to do it in, but I have to weekend to look forward to at the end.
Monday, July 26, 2010
Apple Pie
Jared was home this weekend, as he is most of them, since he has to work as a PCA here, (his other job alone will not pay the bills). We are more then happy to have the help because without it we would not and could not take all 4 of the kids any where or do anything. They all need to much one on one time for that. Anyway he went to the Golden Arches and bought apple pies for himself and all of his siblings. They all appreciated the treat, mom never buys that junk for them. Everyone ate their pies except Hanna who decided that she wanted to save her`s for breakfast.
Okay, save yours but what kind of game are you trying to play with this one? Hanna is a kid who would have eaten that whole bag of pies if they had been left unattended at all. Well she had decided that she wanted cookies for a snack instead of what everyone was having so that she could have both the cookies and the pie. When Jared told her it was pie for a snack or nothing, you guessed it, she went nuts so she ended the evening without getting anything.
Jared ate her pie for a midnight snack. No issue there because she can not remember what went on the day before and she has no clue that she got nothing.
Okay, save yours but what kind of game are you trying to play with this one? Hanna is a kid who would have eaten that whole bag of pies if they had been left unattended at all. Well she had decided that she wanted cookies for a snack instead of what everyone was having so that she could have both the cookies and the pie. When Jared told her it was pie for a snack or nothing, you guessed it, she went nuts so she ended the evening without getting anything.
Jared ate her pie for a midnight snack. No issue there because she can not remember what went on the day before and she has no clue that she got nothing.
Friday, July 23, 2010
Toast
I am toast and it isn`t even lunch time yet. It is Dad`s birthday so we were going to have cake today and go do something fun tomorrow since it is a work day today. Hanna got wind of the plans and has now gone bonkers.
She lied to me and has been throwing things at me, but that is nothing new.
She was told to pick up the toys so of course she just had to pick up the ones that Paul was playing with, the ones he always plays witch we never put away. That sent him into a screaming fit so she decided to throw the toys down the stairs, more holes in the wall, just great maybe we should just eliminate that one anyway. After being told that she needed to bring those toys back upstairs she decided to pound her little brother to bits. I had to send Karre upstairs with Paul, Allen, and Lauren to keep them safe. I just let her trash the place after that.
Finally she proceeded to make Karre cry because she can NEVER BEHAVE OR ACT LIKE A REAL KID!. That is totally true the kid always sabotages everything we do.no matter what it is. I totally agree with Karre there are days when I have had enough of all this fake, sweetness, cute, perfectness in public and then coming home and being angry, crazy, rude, mean, and very often dangerous. As Karre says, she has not seen the real kid for three years now and she has had enough.
I need to get some groceries so I think my shopping partner will be Karre today, we both need a break from this nonsense.
By the way "Happy Birthday, Dad", you have know idea how peaceful you have it at work today.
She lied to me and has been throwing things at me, but that is nothing new.
She was told to pick up the toys so of course she just had to pick up the ones that Paul was playing with, the ones he always plays witch we never put away. That sent him into a screaming fit so she decided to throw the toys down the stairs, more holes in the wall, just great maybe we should just eliminate that one anyway. After being told that she needed to bring those toys back upstairs she decided to pound her little brother to bits. I had to send Karre upstairs with Paul, Allen, and Lauren to keep them safe. I just let her trash the place after that.
Finally she proceeded to make Karre cry because she can NEVER BEHAVE OR ACT LIKE A REAL KID!. That is totally true the kid always sabotages everything we do.no matter what it is. I totally agree with Karre there are days when I have had enough of all this fake, sweetness, cute, perfectness in public and then coming home and being angry, crazy, rude, mean, and very often dangerous. As Karre says, she has not seen the real kid for three years now and she has had enough.
I need to get some groceries so I think my shopping partner will be Karre today, we both need a break from this nonsense.
By the way "Happy Birthday, Dad", you have know idea how peaceful you have it at work today.
Speech
Paul is the kind of kid who tells it like it is, no beating around the bush at all.
He and the docker (doctor) had a conversation a few days ago about Ernie and his hubber ducky (rubber ducky).
He watches The Mickey Mouse Cubs House (Mickey Mouse Club House).
We watch the Tins (Twins) play baseball.
He also tells his speech therapist on a regular basis that he do need no peach (speech).
The kid is just too cute for his own good. He still has many speech issues, but has come far beyond anything we could have ever hoped for so in a few weeks when he starts kindergarten he will no longer be going to speech therapy. He will have some time scheduled during the school day. He does not know that yet, however.
He and the docker (doctor) had a conversation a few days ago about Ernie and his hubber ducky (rubber ducky).
He watches The Mickey Mouse Cubs House (Mickey Mouse Club House).
We watch the Tins (Twins) play baseball.
He also tells his speech therapist on a regular basis that he do need no peach (speech).
The kid is just too cute for his own good. He still has many speech issues, but has come far beyond anything we could have ever hoped for so in a few weeks when he starts kindergarten he will no longer be going to speech therapy. He will have some time scheduled during the school day. He does not know that yet, however.
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