It`s another day another meeting around here. Today I had a meeting to re-evaluate Lauren in order to keep her CADI waiver services. Things are changing so fast that it is hard to keep up with all of it. The worker that was here today does net even know how all of these changes are going to affect Lauren`s services. At this point things will remain the same. She will get what she needs simply because she has diagnosis that fit in the plan. I am very grateful to have such services for her. It allows her to be the best that she can be.
I am very concerned about maintaining services for one of my other kids because there are very different diagnosis and therefore the means of qualifying for those services are going to be different.
These kids are very different however, they both require supervision 24/7, they both are very vulnerable, and both have about the same IQ. So why is it that one of them will qualify for services that allows them to function to the best of their ability and the other will not qualify?
Is it that the kid with the massive behavior issues is less valued in our society" Is it that it is easier to see the disability when it involves something that can be seen, such as a wheelchair? Is it that there is not a means of documenting the behavior issues in order to make them real and believable for most of society? I do not know what the answer is, but I do know that both of these kids matter equally for their mom and it is very hard to be a part of this. I know that the kid who does not get services will suffer greatly. There will be consequences for what happens here. I also know that parenting the kid with physical challenges is altogether different then parenting the one with behavior issues. They both need people to be there to keep them safe, to help them meet both their emotional and physical needs, and to give Mom and Dad a break. Th
The the thing that scares me most about all of this is that all of the people I work with in advocating for these kids agree that things are going to get a lot worse. I wish that some one who has the power to do something about all of this could just be a "fly on the wall" here so that they could understand and make things better for all of these kids and their families.