I do not know if I can handle much more of this stuff.
We have less then half the PCA hours we had last year.
Summer school is out.
Wheelchairs no longer get repaired.
There is no more therapy.
They give us 8 hours a month (yeah it was 4 and I went nuts so they gave me 8) and think they are doing a great service and the kicker here is that they are calling these 8 hours a month of respite a rehabilitation service. How is respite care rehabilitating my kid???
and now...they are trying to make it impossible to get paid for the hundreds of miles that I put on my van every month to get kids to medical appointments.
What will be next??? I do not work so that I can take care of these kids, our older kids have NO college fund, we have very little saved to retire on, and we ALWAYS have bills that are a direct result of the special needs the kids have. AAARRRRGGGGGGHHHHHH!!!!!